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Sally A. Norton, PhD, RN, FNAP, FPCN, FAAN
  • Phone: (585) 275-9814
  • Office: HWH 2W152
  • Email: Sally Norton

Sally A. Norton, PhD, RN, FNAP, FPCN, FAAN

  • Associate Dean for Research
  • Independence Foundation Chair in Nursing and Palliative Care
  • Professor

Education

  • Postdoctoral Research Fellowship in Sponsor: Virginia P. Tilden, DNSc, RN, FAAN, School of Nursing & Program of Research on Ethics and End-of-Life Care, 2001. Oregon Health & Science University. Portland, OR
  • Research training in Developing nurse scientists, co-sponsored by the National Institute for Nursing Research and National Institutes of Health Clinical Center Nursing Department, 2000. None
  • Summer Seminar in Research Ethics, 2000. University of Washington
  • Ph.D. in Nursing, 1999. University of Wisconsin-Madison. Madison, WI
  • Masters in Nursing, 1994. University of Wisconsin-Madison. Madison, WI
  • BS in Nursing, 1983. University of Iowa. Iowa City, IA

Bio

Sally Norton is dedicated to improving the care of patients with advanced illness. Her well-established program of research is focused on palliative care and end-of-life decision-making with emphases on the communication processes and practice patterns of care delivery in acute and long-term care settings.

A nationally recognized expert in palliative care research and qualitative and mixed-method research designs, she has worked successfully across professions to improve communication and understanding surrounding systems of palliative care and hospice delivery, and to pinpoint the approaches most meaningful to patients and families that lead to the highest quality outcomes.

Norton is a fellow of the Hospice and Palliative Care Nurses Association (HPNA) and the American Academy of Nursing. She also serves as a co-director of research for the Division of Palliative Care in the Department of Medicine at the University of Rochester and holds a secondary appointment in the School of Medicine and Dentistry. She was honored with the Distinguished Researcher Award from the HPNA in 2017, and was named Palliative Care Nurse of the Year by the March of Dimes in 2013, and a Distinguished Practitioner by the National Academies of Practice in 2006.


Professional Experience

Professor,
University of Rochester School of Nursing, Rochester, NY, US. 2019 - Current

Professor,
University of Rochester School of Medicine & Dentistry (Department of Medicine and Palliative Care), Rochester, NY, US. 2019 - Current

Associate Dean for Research,
University of Rochester School of Nursing, Rochester, NY, US. 2019 - Current

Associate Professor (Secondary),
University of Rochester School of Medicine and Dentistry (Medical Humanities and Family Medicine), Rochester, NY. 2008 - 2019

Associate Professor,
University of Rochester Elaine C. Hubbard Center for Nursing Research on Aging (Palliative care, communication, ethics, end-of-life decision making), Rochester, NY. 2008 - 2019

Co-Director,
Center for Ethics, Humanities, and Palliative Care, University of Rochester Medical Center (Research and Performance Improvement), Rochester, NY, US. 2003 - 2018

Associate Professor Family Medicine (Secondary),
UR School of Medicine and Dentistry, Rochester, NY, US. 2010 - 2017

Assistant Professor (Secondary),
University of Rochester School of Medicine and Dentistry (Medical Humanities), Rochester, NY, US. 2003 - 2008

Assistant Professor,
Elaine C. Hubbard Center for Nursing Research on Aging, University of Rochester School of Nursing (Aging), Rochester, NY, US. 2001 - 2008

Awards

Distinguished Alumni
University of Iowa School of Nursing, 2021

Distinguished Researcher Award
Hospice & Palliative Nurses Association, 2017

Featured Nurse Leader
American Academy of Nursing, 2017

Independence Chair in Nursing and Palliative Care
Independence Foundation, 2014

The Palliative Care Nurse of the Year
March of Dimes, 2013

The Jeremy A. Klainer Endowed Dean's Award in Nursing
University of Rochester, School of Nursing, 2012

Fellow
American Academy of Nursing, 2012

Professional Advancement Award
University of Rochester, School of Nursing, 2011

Fellow in Palliative Care Nursing
Hospice and Palliative Care Nurses Association , 2009

Outstanding Faculty Colleague
University of Rochester School of Nursing, 2007

Distinguished Practitioner
National Academies of Practice, 2006

John A. Hartford Geriatric Nursing Research Scholar
Summer Research Institute at New York University, 2002

The Promising New Investigator Award
University of Rochester School of Nursing, 2002

John A. Hartford Geriatric Nursing Research Award
Eastern Nursing Research Society, 2002

The Ada Sue Hinshaw Nurse Scholar Award
Friends of the National Institute of Nursing Research, 2000

Vilas Professional Development Award
University of Wisconsin, 1999

Qualitative Section Dissertation Proposal Award of
Midwest Nursing Research Society, 1998

Annual Research Award
Sigma Theta Tau Beta Eta Chapter, 1997

Charles Eckburg Dissertation Scholarship Recipient
1997

Nursing Excellence Scholarship
American Association of Critical Care Nurses, 1992

Presentations

The effects of uncertainty and emotional distress on quality of life in patients with advanced cancer and their family caregivers: Testing dyadic relationship using Actor-Partner Interdependent Model
Oncology Nursing Conference Congress, 2020
San Antonio, Texas

"I have a doctor that handles all the other stuff." Perceptions of older adults about discussing age-related concerns with their oncologists.
International Society of Geriatric Oncology, 2019
Geneva, Apo / Fpo Europe, Switzerland

The prevalence and determinants of feeling completely heard and understood before and after palliative care consultation
International Conference on Communication in Healthcare Annual Research Conference, 2017
Baltimore, Maryland

Impact of nursing home palliative care teams on end-of-life outcomes: A randomized controlled trial
Academy Health Annual Meeting, 2017
New Orleans, Louisiana

Goal communication in palliative care decision-making consultations
International Conference on Communication in Healthcare, 2016
New Orleans, Louisiana

Goals of care transition in palliative care consultation
27th Annual Eastern Nursing Research Society, 2015
Washington, District Of Columbia

Making your measurements matter: The AAHPM and HPNA Measuring What Matters Project
Annual Assembly of the American Academy of Hospice and Palliative Medicine, 2015
Philadelphia, Pennsylvania

The many faces of leadership in palliative care nursing
Leadership Weekend, Hospice and Palliative Nurses Association, 2014
Pittsburgh, Pennsylvania

Emotional Storm Tracking: Toward the Development of a Method for Measuring Paralinguistic Expressions of Emotions
American Academy on Communication in Healthcare International Conference, 2013
Montreal, Central America

Patient and loved one's emotional expressions in palliative care decision-making consultation: A direct observation study
American Academy on Communication in Healthcare International Conference, 2013
Montreal, Central America

Patient and family members' perceptions of the role of palliative care in late-stage heart failure care
State of the Science: Council for the Advancement of Nursing Science, 2011
Washington, District Of Columbia

Frequency and Characteristics of Prognosis Communication in Palliative Care Inpatient Consultations
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011
Bethesda, Maryland

Patient and family members' perceptions of the role of palliative care in late-stage heart failure care
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011
Bethesda, Maryland

The problem often is that we do not have a family spokesperson but a spokesgroup. Family member informal roles in end of life decision making in adult intensive care units.
The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011
Bethesda, Maryland

The Conversation Bank Cohort: A Feasibility Study
American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association Annual Meeting, 2011
Vancover, Central America

Perceptions of EOL Symptom Control in Nursing Homes
American Academy of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association Annual Meeting, 2009
Austin, Texas

Is Palliative Care at the End of Life Cost Saving?
Academy Health Meeting, 2008
Washington, District Of Columbia

Measuring End-of-Life Care Processes in Nursing Homes.
Academy Health Meeting, 2008
Washington, District Of Columbia

I want to die in my dream home: Home Terminal Extubations
American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting, 2007
Salt Lake City, Utah

What bothers you the most? Initial responses from patients receiving palliative care.
American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting, 2007
Salt Lake City, Utah

Proactive Palliative Care Consultation in the Medical ICU: A Model for Nurse Managers
University of Rochester, 2006
Rochester, New York

They're Not Ready Yet: Time and Timing in End of Life Decision Making
Annual Meeting, American Association of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association, 2006
Nashville, Tennessee

Proactive Palliative Care in the Medical Intensive Care Unit
Annual Meeting, American Association of Hospice and Palliative Car, 2006
Nashville, Tennessee

Proactive Palliative Care Consultation in the Medical ICU
University of Rochester Medical Center Palliative Care Rounds, University of Rochester, 2006
Rochester, New York

ICU Cultural Environments and End-of-Life Decision Making
Annual Meeting, Gerontological Society of America, 2005
Orlando, Florida

What Bothers You Most? Responses From Patients Receiving Palliative Care Consultation
Annual Meeting, American Geriatrics Society, 2005
Orlando, Florida

Limitation of Treatment Decision Making in the ICU: An Ethnographic Study
Annual Meeting, National Congress for the State of the Science, 2004
Washington, District Of Columbia

Integrating Performance Improvement and Research into a Palliative Care Clinical Consultation Service: Challenges and Opportunities
Management and Leadership Conference, National Association of Hospice and Palliative Care Organization, 2004
Washington, District Of Columbia

Palliative Care in the ICU: The IHI Project, with Robert Holloway, M.D. and Expert Clinical Panel
University of Rochester Medical Center Biopsychosocial Rounds, University of Rochester, 2004
Rochester, New York

Palliative Care Consultations: 2 Years and Counting with Timothy Quill, M.D. and Jeffrey Allen, M.D.
Biopsychosocial Rounds, University of Rochester Medical Center, 2004
Rochester, New York

ICU Culture and Family Meetings for Older Adults Near the End of Life
Annual Meeting, Gerontological Society of America, 2003
San Diego, California

Working With People Near the End of Life
United Methodist Church, 2003
Bergen, New York

Nursing Homes, Ethics, and Life Sustaining Treatment Limitation
University of Rochester Interdisciplinary Clinical Ethics Rounds, University of Rochester, 2003
Rochester, New York

Family Meetings: Culture, Structure and Function in Three ICU Settings
Annual Conference, Eastern Nursing Research Society, 2003
New Haven, Connecticut

Palliative Care in Acute Care Settings: New Horizons
University of Rochester School of Nursing Research Forum, University of Rochester, 2002
Rochester, New York

Values, Policy and Political Action
12th Annual Conference, International Critical and Feminist Perspectives in Nursing, 2002
Portland, Maine

The Symbolic Representation of Nursing Homes in Decisions to Limit Life-Sustaining Treatment Near the End of Life
55th Annual Scientific Meeting, Gerontological Society of America, 2002
Boston, Massachusetts

Shared Decision-Making Near the End of Life: Family Members' Perspectives
14th Annual Scientific Sessions, Eastern Nursing Research Society, 2002
Pennsylvania

Facilitating Decision-Making Near the End of Life: A Systematic Review of End of Life Decision-Making in Long Term Care
3rd Annual Conference, Evidence-Based Practice, 2001
Rochester, New York

Physicians Orders for Life-Sustaining Treatment
Presentation with Margaret M. Carley, RN, JD, Porthaven Care Center, 2001
Portland, Oregon

Provider Comfort and Experience: Two Conditions of End-of-Life Care Planning
Annual Meeting, American Public Health Association, 2000
Boston, Massachusetts

The Role of Clinical Ethics Consult Services
Presentation, Oregon Health Sciences University, 2000
Portland, Oregon

Building on a Legacy of Excellence in Nursing Research
33rd Annual Communicating Nursing Research Conference, WIN Assembly, 2000
Denver, Colorado

Negotiating End-of-Life Decisions: A Grounded Theory Study
Annual Meeting, Midwest Nursing Research Society, 2000
Dearborn, Michigan

Ethics and End-of-Life Issues for Legal and Ethical Issues in Healthcare
Trial Conference, Legacy Meridian Park Hospital, 2000
Tualatin, Oregon

Reconciling Decisions Near the End of Life: A Grounded Theory Study
Annual Meeting, Midwest Nursing Research Society, 1999
Indianapolis, Indiana

DNR and Advance Directives: Legal and Ethical Issues
Ethics Symposium, Eldercare, 1999
Madison, Wisconsin

Negotiating Decisions Near the End of Life
Pain and Palliative Care Conference, University of Wisconsin Hospitals and Clinics, 1999
Madison, Wisconsin

Trauma Ethics
Trauma Course, Emergency Nurses Association, 1998
Madison, Wisconsin

Patient Perceptions of Intravenous Patient Controlled Analgesics
Research Day, Beta Eta Chapter of Sigma Theta Tau, 1998
Madison, Wisconsin

Reconciling Choices and Goals Near the End of Life
Annual Meeting, Midwest Nursing Research Society, 1998
Columbus, Ohio

Negotiating Decisions Near the End of Life
Annual Meeting, Wisconsin Nurses Association, 1997
Madison, Wisconsin

Ethical and Professional Practice Issues and Trends
Nursing Informatics Partnership Conference, Midwest Alliance in Nursing, 1997
Madison, Wisconsin

Perceptions and Use of Advance Directives Near the End of Life
Annual Research Day, Beta Eta Chapter of Sigma Theta Tau, 1997
Madison, Wisconsin

Searching for an Explanation of Patient Satisfaction with Pain Management
21st Annual Scientific Meeting, American Pain Society, 1997
Chicago, Illinois

Nurses Perceptions and Use of Advance Directives
Research Colloquium, University of Wisconsin School of Nursing, 1997
Madison, Wisconsin

Nursing Ethics at the Bedside
Edgewood College, 1997
Madison, Wisconsin

Ethical Decision Making for Nurses
Outreach and Continuing Education in Nursing Audiotape Series, University of Wisconsin, 1996
Madison, Wisconsin

Exploring Dependency: Ethical and Political Consequences for Chronically Ill Persons
School of Nursing Research Colloquium, University of Wisconsin, 1996
Madison, Wisconsin

Issues in Knowledge Development in Nursing
School of Nursing Research Colloquium, University of Wisconsin, 1996
Madison, Wisconsin

End-of-Life Decision Making and Dependency: A Grounded Theory Study
International Images of Health Conference, University of Ballarat, 1996
Victoria, Austria

Multi-System Organ Failure: A Case Study
University of Wisconsin, School of Nursing, 1994
Madison, Wisconsin

Caring for Patients with Liver Disease; A Case Study
University of Wisconsin, School of Nursing, 1994
Madison, Wisconsin

Multi-System Organ Failure: A Case Study
University of Wisconsin, School of Nursing, 1994
Madison, Wisconsin

Caring for Patients with Liver Disease; A Case Study
University of Wisconsin, School of Nursing, 1994
Madison, Wisconsin

An Ethic of Care
The Challenge of Ethical Decision Making Conference, University of Wisconsin Hospital and Clinics, 1992
Madison, Wisconsin

Psycho-Social Implications for the Critically Ill Patient and Family
University of Wisconsin Hospital and Clinics, 1992
Madison, Wisconsin

Advanced Directives and Ethics in the Critical Care Arena
Southwest Wisconsin Chapter of the American Association of Critical Care Nurses, 1992
Madison, Wisconsin

Precepting Students and Staff
Introductory Preceptor Workshop, University of Wisconsin Hospital and Clinics, 1992
Madison, Wisconsin

Publications

  • Underhill-Blazey, M., Mulligan, and Norton, SA. (2022). Scoping review of studies involving patients with inherited cancer risk following risk reduction: non-pharmacologic symptom and quality of life interventions.. Oncology Nursing Forum.

  • Seshadri, S., Norton, S.A., Stahl, T. Shah, M., Dini, M., Yarab, N., Holtrop, J.S. and Kluger, B. (2022). Between a Rock and a Hard Place: The Challenges of Caregiving During a Pandemic for Parkinson’s Family Care Partners. American Journal of Hospice and Palliative Medicine. DOI: 10.1177/10499091221119462

  • LoCastro, M, Sanapala, C., Mendler, JH, Norton, S., Bernacki, R., Carroll, T., Klepin, H., Watson, E., Liesveld, J., Huselton, E., O’Dwyer, K., Baran, A., Flannery, M., Kluger, B.M., Loh, K.P. (2022). Advance care planning in older patients with acute myeloid leukemia and myelodysplastic syndromes.. Journal of Geriatric Oncology.

  • Zhang, Z., Stein, K.F., Norton, S.A., Flannery, M.A. (2022). An analysis and evaluation of Kumpfer’s Resilience Framework. Advances in Nursing Science.

  • Watson, E.E., Sanapala, C., Cortes, A.M., Klepin, H.D., Wittink, M., Norton, S.A., Richardson, D.R., Dale, W., Magnuson, A., Mendler, J.H. and Liesveld, J.L., Huselton, E.J., O'Dwyer, K.M., LeBlanc, T.W., El-Jawahri, A., Wong, M., and Loh K.P. (2022). Adapting a patient-centered communication tool for older patients with acute myeloid leukemia and their oncologist. Blood Advances. DOI: 10.1182/bloodadvances.2022008041

  • Underhill-Blazey, M., Zhang, Y., Stanek, S., and Norton, S. (2022). The experience of uncertainty in individuals with high risk for pancreatic cancer.. Cancer Nursing.

  • Kehoe, L., Sanapala, C., DiGiovanni, G., Yousefi-Nooraie, R., Yilmaz, S., Bauer, J., Loh, K.P., Norton, S., Duberstein, P., Kamen, C., Gilmore, N., Gudina, A., Kleckner, A., Mohile, S., Epstein, R. (2022). Older Adults with Advanced Cancer are Selective in Sharing and Seeking Information with Social Networks. Patient Education & Counseling. DOI: 10.1016/j.pec.2022.06.005

  • LoCastro, M., Sanapala, C., Wang, Y., Jensen-Battaglia, M., Wittink, M., Norton, S., Klepin, H. D., Richardson, D. R., Mendler, J. H., Liesveld, J., Huselton, E., O'Dwyer, K., Cortes, A. M., Rodriguez, C., Dale, W., & Loh, K. P. (2022). Patient‐centered communication tool for older patients with acute myeloid leukemia, their caregivers, and oncologists: A single‐arm pilot study. Cancer Medicine. PMID: 36533397 DOI: 10.1002/cam4.5547

  • Duberstein, P. R., Hoerger, M., Norton, S. A., Mohile, S., Dahlberg, B., Hyatt, E. G., Epstein, R. M., & Wittink, M. N. (2022). The TRIBE model: How socioemotional processes fuel end-of-life treatment in the United States. Social Science & Medicine. DOI: 10.1016/j.socscimed.2022.115546

  • Yilmaz, S., Janelsins, M.C., Flannery, M., Culakova, E., Wells, M., Lin, P.-J., Loh, K.P., Epstein, R., Kamen, C., Kleckner, A.S., Norton, S.A., Plumb, S., Alberti, S., Doyle, K., Porto, M., Weber, M., Dukelow, N., Magnuson, A., Kehoe, L.A., Nightingale, G., Jensen-Battaglia, M., Mustian, K.M., & Mohile, S.G. (2022). Protocol paper: Multi-site, cluster-randomized clinical trial for optimizing functional outcomes of older cancer survivors after chemotherapy. Journal of Geriatric Oncology. PMID: 35292232 PMCID: PMC9283231 DOI: 10.1016/j.jgo.2022.03.001

  • Flannery, M.A., Mohile, S., Culakova, E., Norton, S., Kamen, C., Dionne-Odom, J.N., DiGiovanni, G., Griggs, L., Bradley, T., Hopkins, J.O., Liu, J.J., & Loh, K.P. (2022). Completion of Patient-Reported Outcome Questionnaires Among Older Adults with Advanced Cancer. Journal of Pain and Symptom Management, 63 (2), 301-310. PMID: 34371137 PMCID: PMC8816807 DOI: 10.1016/j.jpainsymman.2021.07.032

  • Zhang, Y., Mohile, S., Culakova, E., Norton, S., Poh Loh, K., Kadambi, S., Kehoe, L., Aarne Grossman, V., Vogel, V.G., Burnette, B.L., Bradley, T.P., & Flannery, M. (2022). The shared uncertainty experience of older adults with advanced cancer and their caregivers. Psycho-Oncology. PMID: 35112424 PMCID: PMC9177692 DOI: 10.1002/pon.5895

  • Duberstein, P.R., Maciejewski, P.K., Epstein, R.M., Fenton, J.J., Chapman, B., Norton, S.A., Hoerger, M., Wittink, M.N., Tancredi, D.J., Xing, G., Mohile, S. G., Kravitz, R.L., & Prigerson, H.G. (2020). Effects of the VOICE Communication Intervention on Personal Caregiver Experiences of Cancer Care and Bereavement Outcomes. Journal of Palliative Medicine.

  • Duberstein P.R., Chen M., Hoerger M., Epstein R.M., Perry L.M., Yilmaz S., Saeed F., Mohile S.G., & Norton S.A. (2020). Conceptualizing and Counting Discretionary Utilization in the Final 100 Days of Life: A Scoping Review. Journal of Pain and Symptom Management, 59 (4), 894-+. PMID: 31639495 PMCID: PMC8928482 DOI: 10.1016/j.jpainsymman.2019.10.009

  • Gramling, R., Ingersoll, L. T., Anderson, W., Priest, J., Berns, S., Cheung, K., Norton, S.A., Alexander, S. C. (2019). End-of-life preferences, length-of-life conversations, and hospice enrollment in palliative care: A direct observation cohort study among people with advanced cancer. Journal of Palliative Medicine, 5, 22 (2), 152-156. PMID: 30526222 DOI: 10.1089/jpm.2018.0476

  • Gramling, R., Gajary-Coots, E., Cimino, J., Fiscella, K., Epstein, R., Ladwig, S., Anderson, W., Alexander, S.C., Han, P.K., Gramling, D., Norton, S.A. (2019). Palliative care clinician overestimation of survival in advanced cancer: Disparities and association with end-of-life care. J Pain Symptom Manage, 57 (2), 233-240. PMID: 30391655 DOI: 10.1016/j.jpainsymman.2018.10.510

  • Duberstein, P. R., Kravitz, R. L., Fenton, J. J., Xing, G., Tancredi, D. J., Hoerger, M., Mohile, S.G., Norton, S.A., Prigerson, H.G., & Epstein, R. M. (2019). Physician and patient characteristics associated with more intensive end-of-life care.. Journal of Pain and Symptom Management. PMID: 31004774 PMCID: PMC6679778 DOI: 10.1016/j.jpainsymman.2019.04.014

  • Ingersoll, L., Alexander, S., Priest, J., Ladwig, S., Anderson, W., Fiscella, K., Epstein, R., Norton, S. A., & Gramling, R. (2019). Racial/ethnic differences in prognosis communication during initial inpatient palliative care consultations among people with advanced cancer. Patient education and counseling, 102 (6), 1098-1103. PMID: 30642715 DOI: 10.1016/j.pec.2019.01.002

  • Dougoud, N., Norton, S., Flannery, M., & Quill, T. (2019). Family member contributions in palliative care consultations among patients with advanced cancer.. Nursing Research, 68 (2), 120. DOI: 10.1097/NNR.0000000000000351

  • Duberstein, P.R., Maciejewski, P.K., Epstein, R.M., Fenton, J.J., Chapman, B., Norton, S.A., Hoerger, M., Wittink, M.N., Tancredi, D.J., Zing, G., Mohile, S., Kravitz, R.L., & Prigerson, H.G. (2019). Effects of the values and options in cancer care communication intervention on personal caregiver experiences of cancer care and bereavement outcomes. Journal of Palliative Medicine. PMID: 31237459 PMCID: PMC6818485 DOI: 10.1089/jpm.2019.0078

  • Ingersoll, L. T., Alexander, S. C., Ladwig, S., Anderson, W., Norton, S. A., & Gramling, R. (2019). The contagion of optimism: The relationship between patient optimism and palliative care clinician overestimation of survival among hospitalized patients with advanced cancer. Psycho-oncology, 28 (6), 1286-1292. PMID: 31020758 DOI: 10.1002/pon.5080

  • Saeed, F., Xing, G., Tancredi, D.J., Epstein, R.M., Fiscella, K.A., Norton, S.A., Duberstein, P.R. (2019). Is Annual Income a Predictor of Completion of Advance Directives (ADs) in Patients With Cancer.. The American Journal of Hospice & Palliative Care, 36 (5), 402-407. PMID: 30477311 DOI: 10.1177/1049909118813973

  • Mammen, J., Rhee, H., Norton, S. A., Butz, A. M., Halterman, J. S., & Arcoleo, K (2018). An integrated operational definition and conceptual model of asthma self-management in teens. Journal of Asthma, 55 (12), 1315-1327. PMID: 29351005 PMCID: PMC6053334 DOI: 10.1080/02770903.2017.1418888

  • Chiafery, M. C., Hopkins, P., Norton, S. A., & Shaw, M. H. (2018). Nursing ethics huddles to decrease moral distress among nurses in the intensive care unit. The Journal of Clinical Ethics, 29 (3), 217-226. PMID: 30226823

  • Darlington, A. S. E., Korones, D. N., & Norton, S. A (2018). Parental coping in the context of having a child who is facing death: A theoretical framework. Palliative & Supportive Care, 16 (4), 432-441. PMID: 28701245 DOI: 10.1017/s1478951517000463

  • Rodenbach, R. A., Norton, S. A., Wittink, M. N., Mohile, S., Prigerson, H. G., Duberstein, P. R., & Epstein, R. M. (2018). When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer. Patient Education and Counseling. PMID: 30579772 PMCID: PMC6491225 DOI: 10.1016/j.pec.2018.12.014

  • Saeed, F., Hoerger, M., Norton, S. A., Guancial, E., Epstein, R. M., & Duberstein, P. R. (2018). Preference for Palliative Care in Cancer Patients: Are Men and Women Alike?. Journal of Pain and Symptom Management, 56 (1), 1-6. PMID: 29581034 PMCID: PMC6015521 DOI: 10.1016/j.jpainsymman.2018.03.014

  • Ingersoll, L. T., Saeed, F., Ladwig, S., Norton, S. A., Anderson, W., Alexander, S. C., & Gramling, R. (2018). Feeling heard and understood in the hospital environment: benchmarking communication quality among patients with advanced cancer before and after palliative care consultation. Journal of Pain and Symptom Management, 56 (2), 239-244. PMID: 29729348 DOI: 10.1016/j.jpainsymman.2018.04.013

  • Norton, S. A., Wittink, M. N., Duberstein, P. R., Prigerson, H. G., Stanek, S., & Epstein, R. M. (2018). Family caregiver descriptions of stopping chemotherapy and end-of-life transitions. Supportive Care in Cancer. PMID: 30056528 PMCID: PMC6338326 DOI: 10.1007/s00520-018-4365-0

  • Kamen, C.S., Alpert, A., Margolies, L., Griggs, J.J., Darbes, L., Smith-Stoner, M., Lytle, M., Poteat, T., Scout, N., Norton, S.A. (2018). "Treat us with dignity": a qualitative study of the experiences and recommendations of lesbian, gay, bisexual, transgender, and queer (LGBTQ) patients with cancer. Supportive Care in Cancer. PMID: 30411237 PMCID: PMC6506401 DOI: 10.1007/s00520-018-4535-0

  • Temkin-Greener H, Mukamel DB, Ladd H, Ladwig S, Caprio TV, Norton SA, Quill TE, Olsan TH, Cai X (2018). Impact of Nursing Home Palliative Care Teams on End-of-Life Outcomes: A Randomized Controlled Trial. Medical Care, 56 (1), 11-18. PMID: 29068904

  • Gramling R, Stanek S, Han PKJ, Duberstein P, Quill TE, Temel JS, Alexander SC, Anderson WG, Ladwig S, Norton SA. (2018). Distress Due to Prognostic Uncertainty in Palliative Care: Frequency, Distribution, and Outcomes among Hospitalized Patients with Advanced Cancer. Journal of Palliative Medicine, 21 (3), 315-321. PMID: 28920751 DOI: 10.1097/MLR.0000000000000835.

  • Saeed, F., Hoerger, M., Norton, SA., Guancial, E., Epstein, RM., Duberstein, PR (2018). Preference for Palliative Care in Cancer Patients Are Men and Women Alike?. Journal of Pain and Symptom Management. PMID: 29581034 PMCID: PMC6015521 DOI: 10.1016/j.jpainsymman.2018.03.014

  • Norton, S., Ladwig, S., Caprio, T. V., Quill, T., & Temkin-Greener, H (2018). Staff experiences of forming and sustaining palliative care teams in nursing homes. The Gerontologist, 58 (4), 749-758. PMID: 29309584 DOI: 10.1093/geront/gnx201

  • Darlington, AE; Korones, DN; Norton, SA. (2017). Parental coping in the context of having a child who is facing death: A theoretical framework. Palliative and Supportive Care, 1-10. PMID: 28701245 DOI: 10.1017/S1478951517000463

  • Lindley, L., Herr, K., & Norton, S. A. (2017). The role of hospice and palliative care nurses in quality improvement. Journal of Hospice & Palliative Nursing, 19 (2), 160-165.

  • Temkin-Greener, H. Ladwig, S. Ye, Z. Norton, S. A. Mukamel, D. B. (2017). Improving palliative care through teamwork (IMPACTT) in nursing homes: Study design and baseline findings. , 56, 1-8. PMID: 28315478 DOI: 10.1016/j.cct.2017.01.011

  • Dougoud, N., Stanek, S., Norton, S., & Gramling, R. (2017). Use of Secondary Data for Doctoral Dissertations. Nursing Research, 66 (2), E30-31.

  • Casarett, DJ; Norton, SA; Dy, SM; Herr, K; Rotella, JD; Ast, K; Lupu, D; Matzo, M (2016). Making Your Measurement Matter: Implementing the AAHPM & HPNA Measuring What Matters Project. Journal of Pain and Symptom Management., 51 (2), 335-335.

  • Mammen JR, Rhee H, Norton SA, Butz AM. (2016). Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma.. Journal of Asthma. PMID: 27337035 PMCID: PMC5182183 DOI: 10.1080/02770903.2016.1201835

  • Mammen, J., Rhee, H., Norton, S.A. (2016). It's Just My Normal Symptoms:'Understanding Teen Asthma Self-Management. , 15 (1).

  • Norton, S., Dougoud, N., Pyke, H., Tedesco, S., Quil, T., Powers, B. (2015). Goals of Care Transition in Palliative Care Consultation. Nursing Research, 64 (2), E130. DOI: 10.1097/NNR.0000000000000089

  • Alexander SC, Garner DK, Somoroff M, Gramling DJ, Norton SA, Gramling R (2015). Using music[al] knowledge to represent expressions of emotions. Patient Education and Counseling, 98 (11), 1339-45. PMID: 26160038 DOI: 10.1016/j.pec.2015.04.019

  • Mammen JR, Norton SA, Rhee H, Butz AM (2015). New approaches to qualitative interviewing: Development of a card sort technique to understand subjective patterns of symptoms and responses. Int J Nurs Stud, pii: S0020-7489(15)00387-9.. PMID: 26897540 PMCID: PMC4837076 DOI: 10.1016/j.ijnurstu.2015.12.011

  • Gramling R, Sanders M, Ladwig S, Norton S, Epstein R, Alexander S (2015). Goal Communication in Palliative Care Decision-Making Consultations. Journal of Pain and Symptom Management, 55 (5), 701-6. PMID: 26025274 DOI: 10.1016/j.jpainsymman.2015.05.007

  • Gramling, Robert; Gajary-Coots, Elizabeth; Stanek, Susan; Dougoud, Nathalie; Pyke, Heather; Thomas, Marie; Cimino, Jenica; Sanders, Mechelle; Alexander, Stewart C.; Epstein, Ronald; Fiscella, Kevin; Gramling, David; Ladwig, Susan; Anderson, Wendy; Pantilat, Stephen; Norton, Sally A. (2015). Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study. BMC PALLIATIVE CARE, 19 (14), 40. PMID: 26286538 PMCID: PMC4544824 DOI: 10.1186/s12904-015-0037-8

  • Gramling R, Stanek S, Ladwig S, Gajary-Coots E, Cimino J, Anderson W, Norton SA; AAHPM Research Committee Writing Group (2015). Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting. J Pain Symptom Manage, pii: S0885-3924(15)00607-7.. PMID: 26596879 DOI: 10.1016/j.jpainsymman.2015.10.018

  • Dy SM, Herr K, Bernacki RE, Kamal AH, Walling AM, Ersek M, Norton SA (2015). Methodological Research Priorities in Palliative Care and Hospice Quality Measurement. J Pain Symptom Manage, 2015 Nov 17. pii: S0885-3924(15)00608-9.. PMID: 26596877 DOI: 10.1016/j.jpainsymman.2015.10.019

  • Casarett, DJ, Norton, S, Morss, S. Herr, K, Rotella, JD, Lupu, D (2015). Making Your Measurement Matter: The AAHPM & HPNA Measuring What Matters Project. Journal of Pain and Symptom Management, 49 (2), 345-346.

  • Dy SM, Kiley KB, Ast K, Lupu D, Norton SA, McMillian SC, Herr K, Rotella JD, Casarett DJ. (2015). Measuring What Matters: Top-Ranked Quality Indicators for Hospice and palliative Care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association. Journal Pain Symptom Manage.

  • Temkin-Greener, H., Ladwig, S., Caprio, T., Norton, S., Quill, T., Olsan, T., Cai, X., Mukamel, D.B. (2015). Developing palliative care practice guidelines and standards for nursing home-based palliative care teams: a Delphi study.. Journal of American Medical Director Association, 16 (1), 86. PMID: 25481748 DOI: 10.1016/j.jamda.2014.10.013

  • Alexander, S.C., Ladwig, S., Norton, S.A., Gramling, D., Davis, J.K., Metzger, M., DeLuca, J., Gramling R. (2014). Emotional distress and compassionate responses in palliative are decision-making consultations: A direct observational study. Journal of Palliative Medicine. DOI:10.1089/jpm.2013.0551.e-Pub http://online.liebertpub.com/doi/abs/10.1089/jpm.2013.0551.

  • Norton,S.A., Waldrop, D., & Gramling, R. (2014). Interprofessional Teams, Palliative Care, and Ethics.. T.E. Quill and F.G Miller (Eds.) Palliative Care and Ethics: Common Ground and Cutting Edges., 66-87.

  • Lowey, S.E., Norton, S.A., Quinn, J.R., Quill, T.E. (2014). A Place to Get Worse: Perspectives on Avoiding Hospitalization From Patients With End-Stage Cardiopulmonary Disease. Journal of Hospice & Palliative Nursing, 16 (6), 338 - 345. PMID: 25328448 PMCID: PMC4196240 DOI: 10.1097/NJH.0000000000000081

  • Metzger, M., Norton, S. A., Quinn, J. R, Gramling, R. (2013). "That Don't Work for Me"; Patients' and Family Members' Perspectives on Palliative Care ans Hospice in Late-Stage Heart Failure.". Journal of Hospic & Palliative Nursing, 15 (3), 177-182.

  • Gramling R., Norton, S.A., Ladwig, S., Winters, P., Metzger, M., Quill, T., Alexander, S. (2013). Latent Classes of Prognosis conversations in Palliative Care: A Mixed -Method Study.. Journal of Palliative Medicine, 16 (6), 653-660.

  • Norton, SA., Metzger, M., Deluca, J., Quill, T., Alexander, S., Gramling, R. (2013). Palliative Care Communication: Linking Patient Prognoses, Values and Goals of Care.. Research in Nursing and Health, 36 (6), 582-590.. PMID: 24114740 DOI: 10.1002/nur.21563

  • Lowey, S., Norton, S.A., Quinn, J.R. and Quill T.E. (2013). Living with Advanced Cardiac or COPD.. Research in Nursing and Health Doi:10.1002/nur.21546.[Epub ahead of print] http://www.ncbi.nlm.nih.gov/pubmed/23754626.

  • Metzger, M., Norton, S.A., Quinn, J.A. & Gramling, R. (2013). Patient and family members' perceptions of palliative care in heart failure.. Heart & Lung: The Journal of Acute and Critical CareDoi:10.1016/jhrtling.2012.11.002.http://www.sciencedirect.com/science/article/pii/S0147956312003986, 42, 112-119.

  • Quinn, J.R., Schmitt, M.H., Baggs, J.G., Norton, S.A., Dombeck, M.T., & Seller, C.R. (2012). The problem often is that we do not have a family spokesperson but a spokes group': Family member informal roles in end-of-life decision making in adult intensive care units.. American Journal of Critical Care, 21 (1), 43-51.

  • Baggs, J.G., Schmitt, M., Prendergast, T.J., Norton, S.A., Sellers, C.R., Quinn, J.R., Press, N. (2012). Who is attending? End-of-life decision making in the intensive care unit.. Journal of Palliative Care Medicine, 15 (1), 56-62.

  • Gramling, R., Norton, S.A., Ladwig, S., Metzger, M., DeLuce, J., Gramling, D., Schartz, D., Epstein, R., Quill, T., Alexander, S. (2012). Direct Observation of Prognosis Communication in Palliative Care: A Descriptive Study. Journal of Pain and Symptom Management, Online ISSN 0885-3924, 10.1016/j.jpainsymman. 2012.02.004http://www.sciencedirect.com/science/artilce/pii/S0885392412001522.

  • Mukamel, D.B., Caprio, T., Ahn, R., Zheng, N.T., Norton, S.A., Quill, T.E., Temkin-Greener, H. (2012). End of life quality of care measures for nursing homes: Place of death and hospice.. Journal of Palliative Medicine, 15 (4), 438-446.

  • Gramling, R., Norton, S., Ladwig, S., Metzger, M., Deluca, J., Epstein, R., Quill, T., Alexander, S. (2012). Forecasting and Foretelling: Association Between Expected Survival Time and Characteristics of Prognosis Communication in Palliative Care Consultations (316-C). Journal of Pain and Symptom Management, 43 (2), 348. DOI: 10.1016/j.jpainsymman.2011.12.058

  • Metzger, M., Norton, S., Grambling, R., Quinn, J. (2012). Heart Failure Patients and Family Members' Understanding of Prognosis and Its Influence On Goals for Patient Care (718). Journal of Pain and Symptom Management, 43 (2), 429-430. DOI: 10.1016/j.jpainsymman.2011.12.196

  • Ladwig, S., Norton, S., Gramling, R., and Metzger, M. (2011). The Conversation Bank Cohort: A Feasibility Study(Abstract #734). The Journal of Pain and Symptom Management, 41 (1), 292.

  • Powers, B.A., Norton, S.A., Schmitt, M.H., Quill, T.E. & Metzger, M. (2011). Meaning and Practice of Palliative Care for Hospitalized Older Adults with Life Limiting Illness.. Journal of Aging Research, 8.

  • DeLuca, J.M. Kearney, M. H., Norton, S.A.,& Arnold, G.L. (2011). Parents' Experiences of Expanded Newborn Screening Evaluations.. Pediatrics, 128, 53-61. PMID: 21708804 DOI: 10.1542/peds.2010-3413

  • Norton, S.A., Powers, B.A., Schmitt, M.H., Metzger, M., Fairbanks, E., Deluca, J. and Quill, T.E, (2011). Navigating Tensions: Integrating Palliative Care Consultation Services into an Academic Medical Cneter Setting.. Journal of Pain and Symptom Management.

  • Temkin-Greener, H., Zheng, N., Norton, S., Quill, T., Ladwig, S., Veazie, P. (2009). Measuring End-of-Life Care Processes in Nursing Homes. The Gerontologist (49), 803-815. PMID: 19574538 PMCID: PMC2775900 DOI: 10.1093/geront/gnp092

  • Wiegand, D., Norton, S. A., and Baggs, J. G. (2008). Challenges in Conducting End of Life Research in Critical Care. AACN Advanced Critical Care, 10 (2), 170-177. PMID: 18560286 DOI: 10.1097/01.AACN.0000318120.67061.82

  • Shah M.J., Quill T.E., Norton S.A., Lam Y., Buckley M. and Fridd C. (2008). "What's bothering you the most: Concerns of palliative care patients.". American Journal of Hospice and Palliative Care Medicine, 25 (2), 88-92.

  • Norton, S. A., Hogan, L., Holloway, R., Temkin Greener, H., Buckley, M., & Quill, T. E. (2007). Proactive Palliative Care in the Medical Intensive Care Unit: Reducing Length of Stay for Selected High Risk Patients. Critical Care Medicine, 35 (6), 1530-1535.

  • Baggs, J. G., Norton, S. A., Schmitt, M. H., Dombeck, M. T., Sellers, C. R., & Quinn, J. R. (2007). Intensive Care Unit Cultures and End-of-Life Decision Making. Journal of Critical Care, 22 (2), 159-168. PMID: 17548028 PMCID: PMC2214829 DOI: 10.1016/j.jcrc.2006.09.008

  • Quill, T., Norton, S., Shah, M., Lam, Y., Fridd, C. & Buckley, M (2006). What is Most Important for you to Achieve? An Analysis of Patient Responses When Receiving Palliative Care Consultation. Journal of Palliative Medicine, 9 (2), 382-388.

  • Bowers, B.J., Esmond, S.E., Norton, S.A., Holloway, E (2006). The Consumer/Provider Relationship as Care Quality Mediator. Consumer Voice and Choice in Long Term Care, 153-166.

  • Murphy, N., Canales, M., Norton, S. A., & DeFilippis, J. (2005). Striving for Congruence: The Interconnection Between Values, Practice and Political Action. Policy, Politics and Nursing Practice, 6 (1), 20-29. PMID: 16443956 DOI: 10.1177/1527154404272145

  • Baggs, J.G., Norton, S.A., Schmitt, M.H., & Sellers, C.R. (2004). The Dying Patient in the ICU: Role of the Interdisciplinary Team. Critical Care Clinics, 20 (3), 525-540. PMID: 15183217 DOI: 10.1016/j.ccc.2004.03.008

  • Norton, S.A., Baggs, J.G., Schmitt, M., Sellers, C.R., Quinn, J.R., Dombeck, M.T (2004). ICU Family Meetings for Adults Near the End of Life: Unpacking a Common Intervention. Journal of Palliative Medicine, 7 (160).

  • Baggs, J.G., Dombeck, M., Quinn, J.R., Norton, S.A., Schmitt, M., Sellers, C.R. (2004). Limitations of Treatment Decision Making in the ICU: An Ethnographic Study (Symposium Abstracts). 2004 Congress Proceedings: National Congress on the State of the Science in Nursing Research, 80-85.

  • Norton, S.A. & Quill, T.E. (2004). Complex Questions Embedded in Tracheotomy Decisions. Head & Neck, 26 (1), 75-76.

  • Hart, K.D., Norton, S.A. (2003). Legal and Ethical Issues in Disaster Response. In T. G. Veenema (Ed.), Disaster Nursing and Emergency Preparedness for Chemical, Biological and Radiological Terrorism and Other Hazards, 82-103.

  • Norton, S.A., Tilden, V.P., Tolle, S.W., Nelson, C.A., & Eggman, S.T. (2003). Life Support Withdrawal: Communication and Conflict. American Journal of Critical Care, 12, 548-555. PMID: 14619361

  • Norton, S.A., Bowers, B.J. (2001). Working Toward Consensus: Provider's Strategies to Shift Patients from Curative to Palliative Treatment Choices. Research in Nursing & Health, 24, 258-269.

  • Canales, M.K., Bowers, B., Norton, S.A. (2000). Becoming Part of a Community: Teaching Strategies of Latina Nursing Faculty. Nursing and Health Care Perspectives, 21, 228-233.

  • Norton, S.A. (2000). Research on End of Life Care: Provider Comfort and Experience: Two Conditions for End of Life Planning. Communicating Nursing Research, 33 (152).

  • Norton, S.A., Talerico, K.A. (2000). Facilitating End-of-Life Decision Making: Strategies for Communicating and Assessing. Journal of Gerontological Nursing, 26 (9), 6-13. PMID: 11883616 PMCID: PMC3732104 DOI: 10.3928/0098-9134-20000901-05

  • Riesch, S.K., Von Sadovsky, V., Norton, S.A., Pridham, K. (2000). Moral Reasoning Among Graduate Students in Nursing. Nursing Outlook, 48 (2), 73-80. PMID: 10811778 DOI: 10.1016/s0029-6554(00)90006-x

  • Baker, C.A., Bowers, B., Ryther-Clark, B.J., Norton, S.A., Canales, M.K. (1999). Self and Identity Through an Interactionist Lens: Constructions and Consequences. International Images of Health: Perspectives, Power and Practice, 66-77.

  • Baker, C., Norton, S.A., Young, T., Ward, S. (1998). An Exploration of Methodological Pluralism in Nursing Research. Research in Nursing and Health, 21, 545-557.

  • Bowers, B., Esmond, S., Holloway, E., Norton, S.A (1996). Quality Care: The Perspectives of Frail Elderly. Wisconsin Bureau of Long Term Support, Division of Community Services, Department of Health and Family Services.

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