Phone: (585) 275-9814
Office: HWH 2W152
Email: Sally Norton

Currently Accepting PhD Students

Sally Norton, PhD, RN, FNAP, FPCN, FAAN

Senior Associate Dean for Research
Independence Foundation Chair in Nursing and Palliative Care
Professor

Education

Postdoctoral Research Fellowship in Sponsor: Virginia P. Tilden, DNSc, RN, FAAN, School of Nursing & Program of Research on Ethics and End-of-Life Care, 2001. Oregon Health & Science University. Portland, OR
Research training in Developing nurse scientists, co-sponsored by the National Institute for Nursing Research and National Institutes of Health Clinical Center Nursing Department, 2000. None
Summer Seminar in Research Ethics, 2000. University of Washington
Ph.D. in Nursing, 1999. University of Wisconsin-Madison. Madison, WI
Masters in Nursing, 1994. University of Wisconsin-Madison. Madison, WI
BS in Nursing, 1983. University of Iowa. Iowa City, IA

Bio

Sally Norton is dedicated to improving the care of patients with advanced illness. Her well-established program of research is focused on palliative care and end-of-life decision-making with emphases on the communication processes and practice patterns of care delivery in acute and long-term care settings.

A nationally recognized expert in palliative care research and qualitative and mixed-method research designs, she has worked successfully across professions to improve communication and understanding surrounding systems of palliative care and hospice delivery, and to pinpoint the approaches most meaningful to patients and families that lead to the highest quality outcomes.

Norton is a fellow of the Hospice and Palliative Care Nurses Association (HPNA) and the American Academy of Nursing. She also serves as a co-director of research for the Division of Palliative Care in the Department of Medicine at the University of Rochester and holds a secondary appointment in the School of Medicine and Dentistry. She was honored with the Distinguished Researcher Award from the HPNA in 2017, and was named Palliative Care Nurse of the Year by the March of Dimes in 2013, and a Distinguished Practitioner by the National Academies of Practice in 2006.

Professor, University of Rochester School of Nursing, Rochester, NY, US. 2019 - Current

Professor, University of Rochester School of Medicine & Dentistry (Department of Medicine and Palliative Care), Rochester, NY, US. 2019 - Current

Associate Dean for Research, University of Rochester School of Nursing, Rochester, NY, US. 2019 - Current

Associate Professor (Secondary), University of Rochester School of Medicine and Dentistry (Medical Humanities and Family Medicine), Rochester, NY. 2008 - 2019

Associate Professor, University of Rochester Elaine C. Hubbard Center for Nursing Research on Aging (Palliative care, communication, ethics, end-of-life decision making), Rochester, NY. 2008 - 2019

Co-Director, Center for Ethics, Humanities, and Palliative Care, University of Rochester Medical Center (Research and Performance Improvement), Rochester, NY, US. 2003 - 2018

Associate Professor Family Medicine (Secondary), UR School of Medicine and Dentistry, Rochester, NY, US. 2010 - 2017

Assistant Professor (Secondary), University of Rochester School of Medicine and Dentistry (Medical Humanities), Rochester, NY, US. 2003 - 2008

Assistant Professor, Elaine C. Hubbard Center for Nursing Research on Aging, University of Rochester School of Nursing (Aging), Rochester, NY, US. 2001 - 2008

Distinguished Nurse Researcher

Center for Nursing Excellence for ANA-NY, 2024

Distinguished Alumni

University of Iowa School of Nursing, 2021

Distinguished Researcher Award

Hospice & Palliative Nurses Association, 2017

Featured Nurse Leader

American Academy of Nursing, 2017

Independence Chair in Nursing and Palliative Care

Independence Foundation, 2014

The Palliative Care Nurse of the Year

March of Dimes, 2013

The Jeremy A. Klainer Endowed Dean's Award in Nursing

University of Rochester, School of Nursing, 2012

Fellow

American Academy of Nursing, 2012

Professional Advancement Award

University of Rochester, School of Nursing, 2011

Fellow in Palliative Care Nursing

Hospice and Palliative Care Nurses Association , 2009

Outstanding Faculty Colleague

University of Rochester School of Nursing, 2007

Distinguished Practitioner

National Academies of Practice, 2006

The Promising New Investigator Award

University of Rochester School of Nursing, 2002

John A. Hartford Geriatric Nursing Research Scholar

Summer Research Institute at New York University, 2002

John A. Hartford Geriatric Nursing Research Award

Eastern Nursing Research Society, 2002

The Ada Sue Hinshaw Nurse Scholar Award

Friends of the National Institute of Nursing Research, 2000

Vilas Professional Development Award

University of Wisconsin, 1999

Qualitative Section Dissertation Proposal Award of

Midwest Nursing Research Society, 1998

Charles Eckburg Dissertation Scholarship Recipient

1997

Annual Research Award

Sigma Theta Tau Beta Eta Chapter, 1997

Nursing Excellence Scholarship

American Association of Critical Care Nurses, 1992

The effects of uncertainty and emotional distress on quality of life in patients with advanced cancer and their family caregivers: Testing dyadic relationship using Actor-Partner Interdependent Model

Oncology Nursing Conference Congress, 2020

San Antonio, Texas

"I have a doctor that handles all the other stuff." Perceptions of older adults about discussing age-related concerns with their oncologists.

International Society of Geriatric Oncology, 2019

Geneva, Apo / Fpo Europe, Switzerland

The prevalence and determinants of feeling completely heard and understood before and after palliative care consultation

International Conference on Communication in Healthcare Annual Research Conference, 2017

Baltimore, Maryland

Impact of nursing home palliative care teams on end-of-life outcomes: A randomized controlled trial

Academy Health Annual Meeting, 2017

New Orleans, Louisiana

Goal communication in palliative care decision-making consultations

International Conference on Communication in Healthcare, 2016

New Orleans, Louisiana

Goals of care transition in palliative care consultation

27th Annual Eastern Nursing Research Society, 2015

Washington, District Of Columbia

Making your measurements matter: The AAHPM and HPNA Measuring What Matters Project

Annual Assembly of the American Academy of Hospice and Palliative Medicine, 2015

Philadelphia, Pennsylvania

The many faces of leadership in palliative care nursing

Leadership Weekend, Hospice and Palliative Nurses Association, 2014

Pittsburgh, Pennsylvania

Emotional Storm Tracking: Toward the Development of a Method for Measuring Paralinguistic Expressions of Emotions

American Academy on Communication in Healthcare International Conference, 2013

Montreal, Central America

Patient and loved one's emotional expressions in palliative care decision-making consultation: A direct observation study

American Academy on Communication in Healthcare International Conference, 2013

Montreal, Central America

Patient and family members' perceptions of the role of palliative care in late-stage heart failure care

State of the Science: Council for the Advancement of Nursing Science, 2011

Washington, District Of Columbia

Frequency and Characteristics of Prognosis Communication in Palliative Care Inpatient Consultations

The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011

Bethesda, Maryland

Patient and family members' perceptions of the role of palliative care in late-stage heart failure care

The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011

Bethesda, Maryland

The problem often is that we do not have a family spokesperson but a spokesgroup. Family member informal roles in end of life decision making in adult intensive care units.

The Science of Compassion: Future Directions in End-of-Life and Palliative Care Research, 2011

Bethesda, Maryland

The Conversation Bank Cohort: A Feasibility Study

American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association Annual Meeting, 2011

Vancover, Central America

Perceptions of EOL Symptom Control in Nursing Homes

American Academy of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association Annual Meeting, 2009

Austin, Texas

Is Palliative Care at the End of Life Cost Saving?

Academy Health Meeting, 2008

Washington, District Of Columbia

Measuring End-of-Life Care Processes in Nursing Homes.

Academy Health Meeting, 2008

Washington, District Of Columbia

I want to die in my dream home: Home Terminal Extubations

American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting, 2007

Salt Lake City, Utah

What bothers you the most? Initial responses from patients receiving palliative care.

American Academy of Hospice and Palliative Care Medicine/Hospice and Palliative Care Nurses Association Annual Meeting, 2007

Salt Lake City, Utah

Proactive Palliative Care Consultation in the Medical ICU: A Model for Nurse Managers

University of Rochester, 2006

Rochester, New York

They're Not Ready Yet: Time and Timing in End of Life Decision Making

Annual Meeting, American Association of Hospice and Palliative Care Medicine and Hospice and Palliative Care Nurses Association, 2006

Nashville, Tennessee

Proactive Palliative Care in the Medical Intensive Care Unit

Annual Meeting, American Association of Hospice and Palliative Car, 2006

Nashville, Tennessee

Proactive Palliative Care Consultation in the Medical ICU

University of Rochester Medical Center Palliative Care Rounds, University of Rochester, 2006

Rochester, New York

ICU Cultural Environments and End-of-Life Decision Making

Annual Meeting, Gerontological Society of America, 2005

Orlando, Florida

What Bothers You Most? Responses From Patients Receiving Palliative Care Consultation

Annual Meeting, American Geriatrics Society, 2005

Orlando, Florida

Limitation of Treatment Decision Making in the ICU: An Ethnographic Study

Annual Meeting, National Congress for the State of the Science, 2004

Washington, District Of Columbia

Integrating Performance Improvement and Research into a Palliative Care Clinical Consultation Service: Challenges and Opportunities

Management and Leadership Conference, National Association of Hospice and Palliative Care Organization, 2004

Washington, District Of Columbia

Palliative Care in the ICU: The IHI Project, with Robert Holloway, M.D. and Expert Clinical Panel

University of Rochester Medical Center Biopsychosocial Rounds, University of Rochester, 2004

Rochester, New York

Palliative Care Consultations: 2 Years and Counting with Timothy Quill, M.D. and Jeffrey Allen, M.D.

Biopsychosocial Rounds, University of Rochester Medical Center, 2004

Rochester, New York

ICU Culture and Family Meetings for Older Adults Near the End of Life

Annual Meeting, Gerontological Society of America, 2003

San Diego, California

Working With People Near the End of Life

United Methodist Church, 2003

Bergen, New York

Nursing Homes, Ethics, and Life Sustaining Treatment Limitation

University of Rochester Interdisciplinary Clinical Ethics Rounds, University of Rochester, 2003

Rochester, New York

Family Meetings: Culture, Structure and Function in Three ICU Settings

Annual Conference, Eastern Nursing Research Society, 2003

New Haven, Connecticut

Palliative Care in Acute Care Settings: New Horizons

University of Rochester School of Nursing Research Forum, University of Rochester, 2002

Rochester, New York

Values, Policy and Political Action

12th Annual Conference, International Critical and Feminist Perspectives in Nursing, 2002

Portland, Maine

The Symbolic Representation of Nursing Homes in Decisions to Limit Life-Sustaining Treatment Near the End of Life

55th Annual Scientific Meeting, Gerontological Society of America, 2002

Boston, Massachusetts

Shared Decision-Making Near the End of Life: Family Members' Perspectives

14th Annual Scientific Sessions, Eastern Nursing Research Society, 2002

Pennsylvania

Facilitating Decision-Making Near the End of Life: A Systematic Review of End of Life Decision-Making in Long Term Care

3rd Annual Conference, Evidence-Based Practice, 2001

Rochester, New York

Physicians Orders for Life-Sustaining Treatment

Presentation with Margaret M. Carley, RN, JD, Porthaven Care Center, 2001

Portland, Oregon

Provider Comfort and Experience: Two Conditions of End-of-Life Care Planning

Annual Meeting, American Public Health Association, 2000

Boston, Massachusetts

The Role of Clinical Ethics Consult Services

Presentation, Oregon Health Sciences University, 2000

Portland, Oregon

Building on a Legacy of Excellence in Nursing Research

33rd Annual Communicating Nursing Research Conference, WIN Assembly, 2000

Denver, Colorado

Negotiating End-of-Life Decisions: A Grounded Theory Study

Annual Meeting, Midwest Nursing Research Society, 2000

Dearborn, Michigan

Ethics and End-of-Life Issues for Legal and Ethical Issues in Healthcare

Trial Conference, Legacy Meridian Park Hospital, 2000

Tualatin, Oregon

Reconciling Decisions Near the End of Life: A Grounded Theory Study

Annual Meeting, Midwest Nursing Research Society, 1999

Indianapolis, Indiana

DNR and Advance Directives: Legal and Ethical Issues

Ethics Symposium, Eldercare, 1999

Madison, Wisconsin

Negotiating Decisions Near the End of Life

Pain and Palliative Care Conference, University of Wisconsin Hospitals and Clinics, 1999

Madison, Wisconsin

Trauma Ethics

Trauma Course, Emergency Nurses Association, 1998

Madison, Wisconsin

Patient Perceptions of Intravenous Patient Controlled Analgesics

Research Day, Beta Eta Chapter of Sigma Theta Tau, 1998

Madison, Wisconsin

Reconciling Choices and Goals Near the End of Life

Annual Meeting, Midwest Nursing Research Society, 1998

Columbus, Ohio

Negotiating Decisions Near the End of Life

Annual Meeting, Wisconsin Nurses Association, 1997

Madison, Wisconsin

Ethical and Professional Practice Issues and Trends

Nursing Informatics Partnership Conference, Midwest Alliance in Nursing, 1997

Madison, Wisconsin

Perceptions and Use of Advance Directives Near the End of Life

Annual Research Day, Beta Eta Chapter of Sigma Theta Tau, 1997

Madison, Wisconsin

Searching for an Explanation of Patient Satisfaction with Pain Management

21st Annual Scientific Meeting, American Pain Society, 1997

Chicago, Illinois

Nurses Perceptions and Use of Advance Directives

Research Colloquium, University of Wisconsin School of Nursing, 1997

Madison, Wisconsin

Nursing Ethics at the Bedside

Edgewood College, 1997

Madison, Wisconsin

Ethical Decision Making for Nurses

Outreach and Continuing Education in Nursing Audiotape Series, University of Wisconsin, 1996

Madison, Wisconsin

Exploring Dependency: Ethical and Political Consequences for Chronically Ill Persons

School of Nursing Research Colloquium, University of Wisconsin, 1996

Madison, Wisconsin

Issues in Knowledge Development in Nursing

School of Nursing Research Colloquium, University of Wisconsin, 1996

Madison, Wisconsin

End-of-Life Decision Making and Dependency: A Grounded Theory Study

International Images of Health Conference, University of Ballarat, 1996

Victoria, Austria

Multi-System Organ Failure: A Case Study

University of Wisconsin, School of Nursing, 1994

Madison, Wisconsin

Caring for Patients with Liver Disease; A Case Study

University of Wisconsin, School of Nursing, 1994

Madison, Wisconsin

Multi-System Organ Failure: A Case Study

University of Wisconsin, School of Nursing, 1994

Madison, Wisconsin

Caring for Patients with Liver Disease; A Case Study

University of Wisconsin, School of Nursing, 1994

Madison, Wisconsin

An Ethic of Care

The Challenge of Ethical Decision Making Conference, University of Wisconsin Hospital and Clinics, 1992

Madison, Wisconsin

Psycho-Social Implications for the Critically Ill Patient and Family

University of Wisconsin Hospital and Clinics, 1992

Madison, Wisconsin

Advanced Directives and Ethics in the Critical Care Arena

Southwest Wisconsin Chapter of the American Association of Critical Care Nurses, 1992

Madison, Wisconsin

Precepting Students and Staff

Introductory Preceptor Workshop, University of Wisconsin Hospital and Clinics, 1992

Madison, Wisconsin

Wang, J., Shen, J.Y., Yu, F., Nathan, K., Caprio, T.V., Conwell, Y., Moskow, M.S., Brasch, J.D., Simmons, S.F., Mixon, A.S., & Norton, S.A. (2024). Challenges in Deprescribing among Older Adults in Post-Acute Care Transitions to Home. Journal of the American Medical Directors Association. PMID: 37913819 PMCID: PMC10843747 DOI: 10.1016/j.jamda.2023.09.021

Seshadri, S., Dini, M., Corcoran, J., Job, A., Contento, A., Norton, S.A., Holtrop, J.S., & Kluger, B.M. (2024). Parkinson disease patients' and carepartners’ perceptions of palliative care. Parkinsonism and Related Disorders, 119. PMID: 38160602 DOI: 10.1016/j.parkreldis.2023.105982

Ramsdale, E., Mohamed, M., Holmes, H.M., Zubkoff, L., Bauer, J., Norton, S.A., & Mohile, S. (2024). Decreasing polypharmacy in older adults with cancer: A pilot cluster-randomized trial protocol. Journal of Geriatric Oncology, 15 (2). PMID: 38302299 PMCID: PMC10923001 DOI: 10.1016/j.jgo.2023.101687

Underhill-Blazey, M., Zhang, Y., Stanek, S., & Norton, S. (2024). The Experience of Uncertainty in Individuals with High Risk for Pancreatic Cancer. Cancer Nursing. DOI: 10.1097/NCC.0000000000001171

Underhill-Blazey, M., Bobry M., Podsiadly, E., Kamen, C., Zhang, Y., Kaul, V., & Norton, S.A. (2024). Development and Initial Pilot Evaluation of a Psychoeducational Intervention for Individuals at High Risk for Pancreatic Cancer. Oncology Nursing Forum. PMID: 39162789 DOI: 10.1188/24.onf.457-465

LoCastro, M., Wang, Y., Yu, T., Mortaz-Hedjri, S., Mendler, J., Norton, S., Bernacki, R., Carroll, T., Klepin, H., Wedow, L., Goonan, S., Erdos, H., Bagnato, B., Liesveld,J., Huselton, E., Kluger, B., & Loh, K.P. (2024). Clinicians’ Perspectives on the Telehealth Serious Illness Care Program for Older Adults With Myeloid Malignancies: Single-Arm Pilot Study. JMIR Formative Research. PMID: 38935428 DOI: 10.2196/58503

Akbar U., Seshadri, S., Dini, M., Auinger, P., Norton, S.A., Holtrop, J.S., & Kluger, B.M. (2024). Current Status of Integrated Palliative Care Among Parkinson Foundation Centers of Excellence in the United States. Neurology Clinical Practice. DOI: 10.1212/CPJ.0000000000200278

Watson, E., Sanapala, C., Cortes, A.M., Klepin,H.D., Wittink, M., Norton, S., Richardson, D.R., Dale, W., Magnuson, A., Mendler, J.H., Liesveld, J., Huselton, E., O’Dwyer, K., LeBlanc, T.W., El-Jawahri, A., Wong, M.L., & Loh, K.P. (2023). Patient-centered communication tool for older patients with acute myeloid leukemia, their caregivers, and oncologists: A single-arm pilot study. Cancer Medicine, 12 (7), 8581-8593. PMID: 36533397 PMCID: PMC10134384 DOI: 10.1002/cam4.5547

Ramsdale, E., Malhotra, A., Holmes, H.M., Zubkoff, L., Wang, J., Mohile, S., Norton, S.A. & Duberstein, P.R. (2023). Emotional barriers and facilitators of deprescribing for older adults with cancer and polypharmacy: a qualitative study. Supportive Care in Cancer, 31 (12). PMID: 37847423 PMCID: PMC10581937 DOI: 10.1007/s00520-023-08084-9

Zhang, Z., Stein, K.F., Norton, S.A., & Flannery, M.A. (2023). An Analysis and Evaluation of Kumpfer’s Resilience Framework. Advances in Nursing Science, 46 (1), 88-100. PMID: 36044351 DOI: 10.1097/ANS.0000000000000446

Duberstein, P.R., Hoerger, M., Norton, S.A., Mohile, S., Dahlberg, B., Hyatt, E.G., Epstein, R.M., & Wittink, M.N. (2023). The TRIBE model: How socioemotional processes fuel end-of-life treatment in the United States. Social Science and Medicine, 317. PMID: 36509614 DOI: 10.1016/j.socscimed.2022.115546

LoCastro, M., Wang, Y., Sanapala, C., Jensen-Battaglia, M., Wittink, M., Norton, S., Klepin, H.D., Richardson, D.R., Mendler, J.H., Liesveld, J., Huselton, E., & Loh, K.P. (2023). Patient preferences, regret, and health-related quality of life among older adults with acute myeloid leukemia: A pilot longitudinal study. Journal of Geriatric Oncology, 14 (5). PMID: 37244139 PMCID: PMC10288066 DOI: 10.1016/j.jgo.2023.101529

LoCastro, M., Sanapala, C., Mendler, J.H., Norton, S., Bernacki, R., Carroll, T., Klepin, H.D., Watson, E., Liesveld, J., Huselton, E., O’Dwyer, K., Baran, A., Flannery, M., Kluger, B., & Poh Loh, K.P. (2023). Adaptation of Serious Illness Care Program to be delivered via telehealth for older patients with hematologic malignancy. Blood Advances, 7 (9), 1871-1884. PMID: 36521100 PMCID: PMC10173172 DOI: 10.1182/bloodadvances.2022008996

Wang, J., Shen, J.Y., Yu, F., Nathan, K, Caprio, T.V., Conwell, Y., Moskow, M.S., Brasch, J.D., Simmons, S.F., Mixon, A.S. & Norton, S.A. (2023). How to Deprescribe Potentially Inappropriate Medications During the Hospital-to-Home Transition: Stakeholder Perspectives on Essential Tasks. Clinical Therapeutics, 45 (10), 947-956. PMID: 37640614 PMCID: PMC10841554 DOI: 10.1016/j.clinthera.2023.07.023

LoCastro, M., Mortaz-Hedjri, S., Wang, Y., Mendler, J.H., Norton, S., Bernacki, R., Carroll, T., Klepin, H., Liesveld, J., Huselton, E., Kluger, B., & Loh, K.P. (2023). Telehealth serious illness care program for older adults with hematologic malignancies: a single-arm pilot study. Blood Advances, 7 (24), 7597-7607. PMID: 38088668 PMCID: PMC10733103 DOI: 10.1182/bloodadvances.2023011046

Seshadri, S., Dini, M., Macchi, Z., Auinger, P., Norton, S.A., Holtrop, J.S., & Kluger, B.M. (2023). Reach of Palliative Care for Parkinson Disease. Neurology: Clinical Practice. PMID: 37854173 PMCID: PMC10581080 DOI: 10.1212/CPJ.0000000000200214

Kehoe, L., Sanapala, C., DiGiovanni, G., Yousefi-Nooraie, R., Yilmaz, S., Bauer, J., Loh, K.P., Norton, S., Duberstein, P., Kamen, C., Gilmore, N., Gudina, A., Kleckner, A., Mohile, S., & Epstein, R. (2022). Older Adults with Advanced Cancer are Selective in Sharing and Seeking Information with Social Networks. Patient Education & Counseling. DOI: 10.1016/j.pec.2022.06.005

Watson, E.E., Sanapala, C., Cortes, A.M., Klepin, H.D., Wittink, M., Norton, S.A., Richardson, D.R., Dale, W., Magnuson, A., Mendler, J.H. and Liesveld, J.L., Huselton, E.J., O'Dwyer, K.M., LeBlanc, T.W., El-Jawahri, A., Wong, M., & Loh K.P. (2022). Adapting a patient-centered communication tool for older patients with acute myeloid leukemia and their oncologist. Blood Advances, 6 (21), 5707-5710. PMID: 35930701 PMCID: PMC9618777 DOI: 10.1182/bloodadvances.2022008041

Underhill-Blazey, M., Rodriguez, D., & Norton, S.A. (2022). Scoping Review of Nonsurgical, Nonpharmacologic Interventions After Risk Reduction: Improving Quality of Life for Patients with Inherited Cancer Risk. Oncology Nursing Forum. DOI: 10.1188/22.ONF.193-200

Seshadri, S., Norton, S.A., Stahl, T. Shah, M., Dini, M., Yarab, N., Holtrop, J.S., & Kluger, B. (2022). Between a Rock and a Hard Place: The Challenges of Caregiving During a Pandemic for Parkinson’s Family Care Partners. American Journal of Hospice and Palliative Medicine. DOI: 10.1177/10499091221119462

Zhang, Z., Stein, K.F., Norton, S.A., & Flannery, M.A. (2022). An analysis and evaluation of Kumpfer’s Resilience Framework. Advances in Nursing Science. DOI: 10.1097/ANS.0000000000000446

LoCastro, M., Sanapala, C., Mendler, J.H., Norton, S., Bernacki, R., Carroll, T., Klepin, H., Watson, E., Liesveld, J., Huselton, E., O’Dwyer, K., Baran, A., Flannery, M., Kluger, B.M., & Loh, K.P. (2022). Advance care planning in older patients with acute myeloid leukemia and myelodysplastic syndromes. Journal of Geriatric Oncology. DOI: 10.1016/j.jgo.2022.09.003

Yilmaz, S., Janelsins, M.C., Flannery, M., Culakova, E., Wells, M., Lin, P.-J., Loh, K.P., Epstein, R., Kamen, C., Kleckner, A.S., Norton, S.A., Plumb, S., Alberti, S., Doyle, K., Porto, M., Weber, M., Dukelow, N., Magnuson, A., Kehoe, L.A., Nightingale, G., Jensen-Battaglia, M., Mustian, K.M., & Mohile, S.G. (2022). Protocol paper: Multi-site, cluster-randomized clinical trial for optimizing functional outcomes of older cancer survivors after chemotherapy. Journal of Geriatric Oncology. PMID: 35292232 PMCID: PMC9283231 DOI: 10.1016/j.jgo.2022.03.001

Flannery, M.A., Mohile, S., Culakova, E., Norton, S., Kamen, C., Dionne-Odom, J.N., DiGiovanni, G., Griggs, L., Bradley, T., Hopkins, J.O., Liu, J.J., & Loh, K.P. (2022). Completion of Patient-Reported Outcome Questionnaires Among Older Adults with Advanced Cancer. Journal of Pain and Symptom Management, 63 (2), 301-310. PMID: 34371137 PMCID: PMC8816807 DOI: 10.1016/j.jpainsymman.2021.07.032

Zhang, Y., Mohile, S., Culakova, E., Norton, S., Poh Loh, K., Kadambi, S., Kehoe, L., Aarne Grossman, V., Vogel, V.G., Burnette, B.L., Bradley, T.P., & Flannery, M. (2022). The shared uncertainty experience of older adults with advanced cancer and their caregivers. Psycho-Oncology. PMID: 35112424 PMCID: PMC9177692 DOI: 10.1002/pon.5895

Duberstein P.R., Chen M., Hoerger M., Epstein R.M., Perry L.M., Yilmaz S., Saeed F., Mohile S.G., & Norton S.A. (2020). Conceptualizing and Counting Discretionary Utilization in the Final 100 Days of Life: A Scoping Review. Journal of Pain and Symptom Management, 59 (4), 894-+. PMID: 31639495 PMCID: PMC8928482 DOI: 10.1016/j.jpainsymman.2019.10.009

Gramling, R., Gajary-Coots, E., Cimino, J., Fiscella, K., Epstein, R., Ladwig, S., Anderson, W., Alexander, S.C., Han, P.K., Gramling, D., & Norton, S.A. (2019). Palliative care clinician overestimation of survival in advanced cancer: Disparities and association with end-of-life care. J Pain Symptom Manage. PMID: 30391655 DOI: 10.1016/j.jpainsymman.2018.10.510

Dougoud, N., Norton, S., Flannery, M., & Quill, T. (2019). Family Member Contributions in Palliative Care Consultations Among Patients with Advanced Cancer. Nursing Research. DOI: 10.1097/NNR.0000000000000351

Ingersoll, L., Alexander, S., Priest, J., Ladwig, S., Anderson, W., Fiscella, K., Epstein, R., Norton, S. A., & Gramling, R. (2019). Racial/ethnic differences in prognosis communication during initial inpatient palliative care consultations among people with advanced cancer. Patient education and counseling. PMID: 30642715 DOI: 10.1016/j.pec.2019.01.002

Gramling, R., Ingersoll, L.T., Anderson, W., Priest, J., Berns, S., Cheung, K., Norton, S.A., & Alexander, S.C. (2019). End-of-life preferences, length-of-life conversations, and hospice enrollment in palliative care: A direct observation cohort study among people with advanced cancer. Journal of Palliative Medicine. PMID: 30526222 DOI: 10.1089/jpm.2018.0476

Duberstein, P.R., Kravitz, R.L., Fenton, J.J., Xing, G., Tancredi, D.J., Hoerger, M., Mohile, S.G., Norton, S.A., Prigerson, H.G., & Epstein, R.M. (2019). Physician and patient characteristics associated with more intensive end-of-life care.. Journal of Pain and Symptom Management. PMID: 31004774 PMCID: PMC6679778 DOI: 10.1016/j.jpainsymman.2019.04.014

Ingersoll, L.T., Alexander, S.C., Ladwig, S., Anderson, W., Norton, S.A., & Gramling, R. (2019). The contagion of optimism: The relationship between patient optimism and palliative care clinician overestimation of survival among hospitalized patients with advanced cancer. Psycho-oncology. PMID: 31020758 DOI: 10.1002/pon.5080

Duberstein, P.R., Maciejewski, P.K., Epstein, R.M., Fenton, J.J., Chapman, B., Norton, S.A., Hoerger, M., Wittink, M.N., Tancredi, D.J., Zing, G., Mohile, S., Kravitz, R.L., & Prigerson, H.G. (2019). Effects of the values and options in cancer care communication intervention on personal caregiver experiences of cancer care and bereavement outcomes. Journal of Palliative Medicine. PMID: 31237459 PMCID: PMC6818485 DOI: 10.1089/jpm.2019.0078

Saeed, F., Xing, G., Tancredi, D.J., Epstein, R.M., Fiscella, K.A., Norton, S.A., & Duberstein, P.R. (2019). Is Annual Income a Predictor of Completion of Advance Directives (ADs) in Patients With Cancer.. The American Journal of Hospice & Palliative Care. PMID: 30477311 DOI: 10.1177/1049909118813973

Rodenbach, R.A., Norton, S.A., Wittink, M.N., Mohile, S., Prigerson, H.G., Duberstein, P.R., & Epstein, R.M. (2018). When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer. Patient Education and Counseling. PMID: 30579772 PMCID: PMC6491225 DOI: 10.1016/j.pec.2018.12.014

Saeed, F., Hoerger, M., Norton, S.A., Guancial, E., Epstein, R.M., & Duberstein, P.R. (2018). Preference for palliative care in cancer patients: Are men and women alike?. Journal of Pain and Symptom Management. PMID: 29581034 PMCID: PMC6015521 DOI: 10.1016/j.jpainsymman.2018.03.014

Norton, S.A., Wittink, M.N., Duberstein, P.R., Prigerson, H.G., Stanek, S., & Epstein, R.M. (2018). Family caregiver descriptions of stopping chemotherapy and end-of-life transitions. Supportive Care in Cancer. PMID: 30056528 PMCID: PMC6338326 DOI: 10.1007/s00520-018-4365-0

Ingersoll, L.T., Saeed, F., Ladwig, S., Norton, S.A., Anderson, W., Alexander, S.C., & Gramling, R. (2018). Feeling heard and understood in the hospital environment: benchmarking communication quality among patients with advanced cancer before and after palliative care consultation. Journal of Pain and Symptom Management. PMID: 29729348 DOI: 10.1016/j.jpainsymman.2018.04.013

Darlington, A.S.E., Korones, D.N., & Norton, S.A. (2018). Parental coping in the context of having a child who is facing death: A theoretical framework. Palliative & Supportive Care. PMID: 28701245 DOI: 10.1017/s1478951517000463

Chiafery, M.C., Hopkins, P., Norton, S.A., & Shaw, M.H. (2018). Nursing ethics huddles to decrease moral distress among nurses in the intensive care unit. The Journal of Clinical Ethics. PMID: 30226823 DOI: 10.1086/JCE2018293217

Mammen, J., Rhee, H., Norton, S.A., Butz, A.M., Halterman, J.S., & Arcoleo, K. (2018). An integrated operational definition and conceptual model of asthma self-management in teens. Journal of Asthma. PMID: 29351005 PMCID: PMC6053334 DOI: 10.1080/02770903.2017.1418888

Kamen, C.S., Alpert, A., Margolies, L., Griggs, J.J., Darbes, L., Smith-Stoner, M., Lytle, M., Poteat, T., Scout, N., & Norton, S.A. (2018). "Treat us with dignity": a qualitative study of the experiences and recommendations of lesbian, gay, bisexual, transgender, and queer (LGBTQ) patients with cancer. Supportive Care in Cancer. PMID: 30411237 PMCID: PMC6506401 DOI: 10.1007/s00520-018-4535-0

Temkin-Greener H., Mukamel D.B., Ladd H., Ladwig S., Caprio T.V., Norton S.A., Quill T.E., Olsan T.H., & Cai X. (2018). Impact of Nursing Home Palliative Care Teams on End-of-Life Outcomes: A Randomized Controlled Trial. Medical Care. PMID: 29068904 DOI: 10.1097/MLR.0000000000000835

Gramling R., Stanek S., Han .PK.J., Duberstein P., Quill T.E., Temel J.S., Alexander S.C., Anderson W.G., Ladwig S., & Norton S.A. (2018). Distress Due to Prognostic Uncertainty in Palliative Care: Frequency, Distribution, and Outcomes among Hospitalized Patients with Advanced Cancer. Journal of Palliative Medicine. PMID: 28920751 DOI: 10.1097/MLR.0000000000000835.

Norton, S., Ladwig, S., Caprio, T. V., Quill, T., & Temkin-Greener, H (2018). Staff experiences of forming and sustaining palliative care teams in nursing homes. The Gerontologist, 58 (4), 749-758. PMID: 29309584 DOI: 10.1093/geront/gnx201

Lindley, L., Herr, K., & Norton, S.A. (2017). The role of hospice and palliative care nurses in quality improvement. Journal of Hospice & Palliative Nursing. DOI: 10.1097/NJH.0000000000000324

Temkin-Greener, H,. Ladwig, S. Ye., Z. Norton, S.A., & Mukamel, D.B. (2017). Improving palliative care through teamwork (IMPACTT) in nursing homes: Study design and baseline findings. Contemporary Clinical Trials. PMID: 28315478 DOI: 10.1016/j.cct.2017.01.011

Dougoud, N., Stanek, S., Norton, S., & Gramling, R. (2017). Use of Secondary Data for Doctoral Dissertations. Nursing Research, 66 (2), E30-31.

Casarett, D.J., Norton, S.A., Dy, S.M., Herr, K., Rotella, J,D., Ast, K., Lupu, D., & Matzo, M. (2016). Making Your Measurement Matter: Implementing the AAHPM & HPNA Measuring What Matters Project. Journal of Pain and Symptom Management.. DOI: 10.1016/j.jpainsymman.2015.12.163

Mammen, J., Rhee, H., & Norton, S.A. (2016). "It's Just My Normal Symptoms" Understanding Teen Asthma Self-Management. International Journal of Qualitative Methods.

Gramling R., Sanders M., Ladwig S., Norton S., Epstein R., & Alexander S. (2015). Goal Communication in Palliative Care Decision-Making Consultations. Journal of Pain and Symptom Management. PMID: 26025274 DOI: 10.1016/j.jpainsymman.2015.05.007

Gramling, R., Gajary-Coots, E., Stanek, S., Dougoud, N., Pyke, H., Thomas, M., Cimino, J., Sanders, M., Alexander, S.C., Epstein, R., Fiscella, K., Gramling, D., Ladwig, S., Anderson, W., Pantilat, S., & Norton, S.A. (2015). Design of, and enrollment in, the palliative care communication research initiative: a direct-observation cohort study. BMC Palliative Care. PMID: 26286538 PMCID: PMC4544824 DOI: 10.1186/s12904-015-0037-8

Mammen J.R., Norton S.A., Rhee H., & Butz, A.M. (2015). New approaches to qualitative interviewing: Development of a card sort technique to understand subjective patterns of symptoms and responses. Int J Nurs Stud. PMID: 26897540 PMCID: PMC4837076 DOI: 10.1016/j.ijnurstu.2015.12.011

Norton, S., Dougoud, N., Pyke, H., Tedesco, S., Quil, T., & Powers, B. (2015). Goals of Care Transition in Palliative Care Consultation. Nursing Research. DOI: 10.1097/NNR.0000000000000089

Alexander S.C., Garner D.K., Somoroff M., Gramling D.J., Norton, S.A., & Gramling R. (2015). Using music[al] knowledge to represent expressions of emotions. Patient Education and Counseling. PMID: 26160038 DOI: 10.1016/j.pec.2015.04.019

Gramling R., Stanek S. Ladwig S., Gajary-Coots E., Cimino J., Anderson W., Norton S.A., & AAHPM Research Committee Writing Group (2015). Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting. J Pain Symptom Manage. PMID: 26596879 DOI: 10.1016/j.jpainsymman.2015.10.018

Dy S.M., Herr K., Bernacki R.E., Kamal A.H., Walling A.M., Ersek M., & Norton, S.A. (2015). Methodological Research Priorities in Palliative Care and Hospice Quality Measurement. J Pain Symptom Manage. PMID: 26596877 DOI: 10.1016/j.jpainsymman.2015.10.019

Dy S.M., Kiley K.B., Ast K., Lupu D., Norton, S.A., McMillian S.C., Herr K., Rotella J.D., & Casarett D.J. (2015). Measuring What Matters: Top-Ranked Quality Indicators for Hospice and palliative Care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association. Journal Pain Symptom Manage. DOI: 10.1016/j.jpainsymman.2015.01.012

Temkin-Greener, H., Ladwig, S., Caprio, T., Norton, S., Quill, T., Olsan, T., Cai, X., & Mukamel, D.B. (2015). Developing palliative care practice guidelines and standards for nursing home-based palliative care teams: a Delphi study.. Journal of American Medical Director Association. PMID: 25481748 DOI: 10.1016/j.jamda.2014.10.013

Alexander, S.C., Ladwig, S., Norton, S.A., Gramling, D., Davis, J.K., Metzger, M., DeLuca, J., & Gramling R. (2014). Emotional distress and compassionate responses in palliative are decision-making consultations: A direct observational study. Journal of Palliative Medicine. DOI:10.1089/jpm.2013.0551.e-Pub http://online.liebertpub.com/doi/abs/10.1089/jpm.2013.0551. DOI: doi.org/10.1089/jpm.2013.0551

Norton,S.A., Waldrop, D., & Gramling, R. (2014). Interprofessional Teams, Palliative Care, and Ethics.. T.E. Quill and F.G Miller (Eds.) Palliative Care and Ethics: Common Ground and Cutting Edges., 66-87.

Lowey, S.E., Norton, S.A., Quinn, J.R., & Quill, T.E. (2014). A Place to Get Worse: Perspectives on Avoiding Hospitalization From Patients With End-Stage Cardiopulmonary Disease. Journal of Hospice & Palliative Nursing. PMID: 25328448 PMCID: PMC4196240 DOI: 10.1097/NJH.0000000000000081

Lowey, S., Norton, S.A., Quinn, J.R., & Quill T.E. (2013). Living with Advanced Cardiac or COPD: Experiences and goals of individuals nearing the end of life. Research in Nursing and Health. DOI: 10.1002/nur.21546

Gramling R., Norton, S.A., Ladwig, S., Winters, P., Metzger, M., Quill, T., Alexander, S. (2013). Latent Classes of Prognosis conversations in Palliative Care: A Mixed -Method Study. Journal of Palliative Medicine. DOI: 10.1089/jpm.2012.0381

Metzger, M., Norton, S.A., Quinn, J.R., & Gramling, R. (2013). "That Don't Work for Me"; Patients' and Family Members' Perspectives on Palliative Care and Hospice in Late-Stage Heart Failure.". Journal of Hospic & Palliative Nursing. DOI: 10.1097/NJH.0b013e3182798390

Metzger, M., Norton, S.A., Quinn, J.A., & Gramling, R. (2013). Patient and family members' perceptions of palliative care in heart failure. Heart & Lung: The Journal of Acute and Critical Care. DOI: 10.1016/j.hrtlng.2012.11.002

Norton, SA., Metzger, M., Deluca, J., Quill, T., Alexander, S., & Gramling, R. (2013). Palliative Care Communication: Linking Patient Prognoses, Values and Goals of Care.. Research in Nursing and Health. PMID: 24114740 DOI: 10.1002/nur.21563

Gramling, R., Norton, S.A., Ladwig, S., Metzger, M., DeLuce, J., Gramling, D., Schartz, D., Epstein, R., Quill, T., & Alexander, S. (2012). Direct Observation of Prognosis Communication in Palliative Care: A Descriptive Study. Journal of Pain and Symptom Management. DOI: 10.1016/j.jpainsymman.2012.02.004

Quinn, J.R., Schmitt, M.H., Baggs, J.G., Norton, S.A., Dombeck, M.T., & Seller, C.R. (2012). The problem often is that we do not have a family spokesperson but a spokes group': Family member informal roles in end-of-life decision making in adult intensive care units. American Journal of Critical Care. DOI: 10.1089/jpm.2012.0381

Baggs, J.G., Schmitt, M., Prendergast, T.J., Norton, S.A., Sellers, C.R., Quinn, J.R., & Press, N. (2012). Who is attending? End-of-life decision making in the intensive care unit.. Journal of Palliative Care Medicine. DOI: 10.1089/jpm.2011.0307

Mukamel, D.B., Caprio, T., Ahn, R., Zheng, N.T., Norton, S.A., Quill, T.E., & Temkin-Greener, H. (2012). End of life quality of care measures for nursing homes: Place of death and hospice.. Journal of Palliative Medicine. DOI: 10.1089/jpm.2011.0345

Gramling, R., Norton, S., Ladwig, S., Metzger, M., Deluca, J., Epstein, R., Quill, T., & Alexander, S. (2012). Forecasting and Foretelling: Association Between Expected Survival Time and Characteristics of Prognosis Communication in Palliative Care Consultations (316-C). Journal of Pain and Symptom Management. DOI: 10.1016/j.jpainsymman.2011.12.058

Metzger, M., Norton, S., Grambling, R., & Quinn, J. (2012). Heart Failure Patients and Family Members' Understanding of Prognosis and Its Influence On Goals for Patient Care (718). Journal of Pain and Symptom Management. DOI: 10.1016/j.jpainsymman.2011.12.196

Powers, B.A., Norton, S.A., Schmitt, M.H., Quill, T.E. & Metzger, M. (2011). Meaning and Practice of Palliative Care for Hospitalized Older Adults with Life Limiting Illness. Journal of Aging Research. DOI: 10.4061/2011/406164

Ladwig, S., Norton, S., Gramling, R., & Metzger, M. (2011). The Conversation Bank Cohort: A Feasibility Study (Abstract #734). The Journal of Pain and Symptom Management. DOI: 10.1016/j.jpainsymman.2010.10.213

DeLuca, J.M. Kearney, M. H., Norton, S.A.,& Arnold, G.L. (2011). Parents' Experiences of Expanded Newborn Screening Evaluations.. Pediatrics, 128, 53-61. PMID: 21708804 DOI: 10.1542/peds.2010-3413

Norton, S.A., Powers, B.A., Schmitt, M.H., Metzger, M., Fairbanks, E., Deluca, J. & Quill, T.E. (2011). Navigating Tensions: Integrating Palliative Care Consultation Services into an Academic Medical Cneter Setting.. Journal of Pain and Symptom Management. DOI: 10.1016/j.jpainsymman.2011.02.010

Temkin-Greener, H., Zheng, N., Norton, S., Quill, T., Ladwig, S., & Veazie, P. (2009). Measuring End-of-Life Care Processes in Nursing Homes. The Gerontologist. PMID: 19574538 PMCID: PMC2775900 DOI: 10.1093/geront/gnp092

Wiegand, D., Norton, S.A., & Baggs, J.G. (2008). Challenges in Conducting End of Life Research in Critical Care. AACN Advanced Critical Care. PMID: 18560286 DOI: 10.1097/01.AACN.0000318120.67061.82

Shah M.J., Quill T.E., Norton S.A., Lam Y., Buckley M. & Fridd C. (2008). “What Bothers You the Most?” Initial Responses from Patients Receiving Palliative Care Consultation. American Journal of Hospice and Palliative Care Medicine. DOI: 10.1177/1049909107310

Norton, S.A., Hogan, L., Holloway, R., Temkin Greener, H., Buckley, M., & Quill, T.E. (2007). Proactive Palliative Care in the Medical Intensive Care Unit: Reducing Length of Stay for Selected High Risk Patients. Critical Care Medicine. DOI: 10.1097/01.CCM.0000266533.06543.0C

Baggs, J.G., Norton, S.A., Schmitt, M.H., Dombeck, M.T., Sellers, C.R., & Quinn, J.R. (2007). Intensive Care Unit Cultures and End-of-Life Decision Making. Journal of Critical Care. PMID: 17548028 PMCID: PMC2214829 DOI: 10.1016/j.jcrc.2006.09.008

Quill, T., Norton, S., Shah, M., Lam, Y., Fridd, C. & Buckley, M. (2006). What is Most Important for you to Achieve? An Analysis of Patient Responses When Receiving Palliative Care Consultation. Journal of Palliative Medicine. DOI: 10.1089/jpm.2006.9.382

Murphy, N., Canales, M., Norton, S. A., & DeFilippis, J. (2005). Striving for Congruence: The Interconnection Between Values, Practice and Political Action. Policy, Politics and Nursing Practice, 6 (1), 20-29. PMID: 16443956 DOI: 10.1177/1527154404272145

Baggs, J.G., Norton, S.A., Schmitt, M.H., & Sellers, C.R. (2004). The Dying Patient in the ICU: Role of the Interdisciplinary Team. Critical Care Clinics, 20 (3), 525-540. PMID: 15183217 DOI: 10.1016/j.ccc.2004.03.008

Norton, S.A., Baggs, J.G., Schmitt, M., Sellers, C.R., Quinn, J.R., & Dombeck, M.T. (2004). ICU Family Meetings for Adults Near the End of Life: Unpacking a Common Intervention. Journal of Palliative Medicine.

Norton, S.A. & Quill, T.E. (2004). Complex Questions Embedded in Tracheotomy Decisions. Head & Neck. PMID: 14738090

Norton, S.A., Tilden, V.P., Tolle, S.W., Nelson, C.A., & Eggman, S.T. (2003). Life Support Withdrawal: Communication and Conflict. American Journal of Critical Care. PMID: 14619361 DOI: 10.4037/ajcc2003.12.6.548

Hart, K.D., & Norton, S.A. (2003). Legal and Ethical Issues in Disaster Response. In T. G. Veenema (Ed.), Disaster Nursing and Emergency Preparedness for Chemical, Biological and Radiological Terrorism and Other Hazards.

Norton, S.A., & Bowers, B.J. (2001). Working Toward Consensus: Provider's Strategies to Shift Patients from Curative to Palliative Treatment Choices. Research in Nursing & Health. DOI: 10.1002/nur.1028

Riesch, S.K., Von Sadovsky, V., Norton, S.A., & Pridham, K. (2000). Moral Reasoning Among Graduate Students in Nursing. Nursing Outlook. PMID: 10811778 DOI: 10.1016/s0029-6554(00)90006-x

Norton, S.A. (2000). Research on End of Life Care: Provider Comfort and Experience: Two Conditions for End of Life Planning. Communicating Nursing Research, 33 (152).

Norton, S.A., & Talerico, K.A. (2000). Facilitating End-of-Life Decision Making: Strategies for Communicating and Assessing. Journal of Gerontological Nursing. PMID: 11883616 PMCID: PMC3732104 DOI: 10.3928/0098-9134-20000901-05

Canales, M.K., Bowers, B., & Norton, S.A. (2000). Becoming Part of a Community: Teaching Strategies of Latina Nursing Faculty. Nursing and Health Care Perspectives.

Baker, C.A., Bowers, B., Ryther-Clark, B.J., Norton, S.A., & Canales, M.K. (1999). Self and Identity Through an Interactionist Lens: Constructions and Consequences. International Images of Health: Perspectives, Power and Practice.

Baker, C., Norton, S.A., Young, T., & Ward, S. (1998). An Exploration of Methodological Pluralism in Nursing Research. Research in Nursing and Health. DOI: 10.1002/(SICI)1098-240X(199812)21:6<545::AID-NUR8>3.0.CO;2-8

Bowers, B., Esmond, S., Holloway, E., & Norton, S.A. (1996). Quality Care: The Perspectives of Frail Elderly. Wisconsin Bureau of Long Term Support, Division of Community Services, Department of Health and Family Services.